I’ve been asked a lot of questions in the last few weeks about running Boston and fundraising for a charity. So I thought I would consolidate the answers into one spot.
How long is a marathon? 26.2 miles. Which I’ve run twice before and have marathon #3 scheduled for January!
Why do you have to fundraise to run Boston? There are two ways to run the Boston marathon: qualify or run for a charity. In my age category the qualifying time is a 3:35! My best marathon right now is a 5:30. I will not likely qualify for Boston in my lifetime. I won’t say never, but it’s not likely! So I’ve gone for option B which is to run for a charity. This means that I have to meet a minimum fundraising requirement to earn my spot!
If you don’t raise the requirement what happens? I have to pay it. I don’t say that to boast, but I say that to share with you the commitment required. I believe whole heartedly that there can be a cure for Rett Syndrome to the point that I will commit to a substantial amount of money!
Why have I not heard of Rett Syndrome? There are diseases like ALS, Huntington’s or multiple sclerosis that are more well known and recognized by the general public. This happens because generally these diseases are contracted by older people (compared to Rett Girls). Perhaps people that have created a name for themselves: Lou Gehrig or Michael J Fox. The sad reality is that these little girls, most diagnosed around the age of two, haven’t had the chance to make a name for themselves yet. Here are the names that I have learned in the last year and a half since learning of Rett Syndrome: Lauren, Skylar, Beatriz, Cammy, Rachel and Destiny. In this process I’m sure I will learn more. Take a second and say their names out loud! Let their names be known!
Rett Syndrome affects 1 in every 10,000 female births. ALS affects 2 in every 100,000 people a year.
Please don’t misunderstand… All of these diseases are bad, but I have a heart for sharing on behalf of these little girls who can not.
If you want to stay updated on the latest fundraising efforts, visit www.tampamomruns.com/runboston